The Digital Koans blog highlights a new article in the Journal of Empirical Research on Human Research Ethics, “Data Rights and Responsibilities: A Human Rights Perspective on Data Sharing” (Theresa L. Harris and Jessica M. Wyndham) explores data sharing through a human rights lens, leading to the formation of “a different set of problems, priorities, and solutions” that scientists should address, such as:
- What rights do individuals have to their own data? In what ways could those rights be violated?
- What rights do individuals and communities have to access the research findings that result from their data? What are their rights to benefit from the findings?
